My Autoimmunelife




About me  

Ask me anything

A Supermodel With Lupus: I am Closed →

supermodelrevealed:

Don’t you dare tell me what you would do if you were in my position…because you’re not.

Fuck your water aerobics class or that vegetarian juice diet that you swear by.

I’m not interested in the medicines you would take, the many miles you would drive to see a ‘special lupus’ doctor to fix you if…

Tagged: slelupuschronic illnesschronic painsickdiseasefuck youspooniedisableddisabilityrant

keepturningtables:

diverse-distractions:

autoimmunelife:

tangerinaballerina:

danathepaina:

thecabbagestalk:

You know the standard question: “rate your pain on a scale of 1 to 10, 10 being the worst pain imaginable”?
Well, this is a little pic that more accurately describes our level of pain on a daily basis. (Pic not mine, “our” being chronic pain/chronic illness sufferers.)

I love this! My current = 7.

I’m currently at an 8 on this scale. it’s gettin’ up there.

My chest… keeps going between a 2 and a 10. :( Stupid costochondritis! :(

This is how the pain scale should be presented in questionares!

ACCURATE
I’m somewhere between 5 and 9 today

I love this scale. I am about a 4 - 5 today…..

keepturningtables:

diverse-distractions:

autoimmunelife:

tangerinaballerina:

danathepaina:

thecabbagestalk:

You know the standard question: “rate your pain on a scale of 1 to 10, 10 being the worst pain imaginable”?

Well, this is a little pic that more accurately describes our level of pain on a daily basis. (Pic not mine, “our” being chronic pain/chronic illness sufferers.)

I love this! My current = 7.

I’m currently at an 8 on this scale. it’s gettin’ up there.

My chest… keeps going between a 2 and a 10. :( Stupid costochondritis! :(

This is how the pain scale should be presented in questionares!

ACCURATE

I’m somewhere between 5 and 9 today

I love this scale. I am about a 4 - 5 today…..

Tagged: Hashimoto'sM.EME/CFSchronic illnesschronic painfibromyagliahypothyroidismpainscoliosisspoonieundiagnosed pain1-10Chronic Pain and Medical Issues

Source: thecabbagestalk

A Supermodel With Lupus: WooHoo I'm Sick!!!!!! →

supermodelrevealed:



You’re on your way to your doctor’s office to discuss your last lab results.

You made sure they drew your blood on a day that you felt particularly awful. You made sure you felt your worse as you watched that large needle disappear just under your skin.

You walked away with a smug look on…

Tagged: cancerchronic illnesschronic painchronsdiabetesdiseasedoctorsdysautonomiafibrofibromyalgiahypochondriaclupusmedicinemspotssickslespooniescleroderma

tangerinaballerina:

danathepaina:

thecabbagestalk:

You know the standard question: “rate your pain on a scale of 1 to 10, 10 being the worst pain imaginable”?
Well, this is a little pic that more accurately describes our level of pain on a daily basis. (Pic not mine, “our” being chronic pain/chronic illness sufferers.)

I love this! My current = 7.

I’m currently at an 8 on this scale. it’s gettin’ up there.

My chest… keeps going between a 2 and a 10. :( Stupid costochondritis! :(

tangerinaballerina:

danathepaina:

thecabbagestalk:

You know the standard question: “rate your pain on a scale of 1 to 10, 10 being the worst pain imaginable”?

Well, this is a little pic that more accurately describes our level of pain on a daily basis. (Pic not mine, “our” being chronic pain/chronic illness sufferers.)

I love this! My current = 7.

I’m currently at an 8 on this scale. it’s gettin’ up there.

My chest… keeps going between a 2 and a 10. :( Stupid costochondritis! :(

Tagged: chronic painpainchronic illnessundiagnosed painfibromyagliascoliosisM.EspoonieME/CFShypothyroidismHashimoto's

Source: thecabbagestalk

100 Beats May Not Be So Normal After All →

supermodelrevealed:

Resting heart rate should be from 60-100 beats a minute is what all the textbooks say but Doctors are starting to rethink that.

Click the link.

Tagged: heart diseasediabeteschronic illnesstachycardiapotsdysautodisautonomiaslelupuscancermssickspoonieheart attackkidney failure

A Supermodel With Lupus: The Big Myth About Chronic Illness... →

supermodelrevealed:

Being sick sure is the life, I’m telling you.

How can a girl have gotten so lucky?!?!??!?!?!?! Screw the lottery, getting a chronic and incurable condition is so much better than that.

Sick Leave—On those cold Monday mornings when Mother Nature has dumped six inches of snow on the ground,…

Tagged: breast cancercancercervical cancerchronic illnesschronsdisabilitydisableddiseasedysautonomiafibromyalgialupusmspotssickslespoonieterminal illnessmigrainesdiabetesasthmaepilepsyendometriosisfibro

Tumblr (Late night) Spoonie Party

If I don’t get tired enough to sleep soon it’s going to be time for a tumblr spoonie party…….. 

I’m sleepy, but I’m not ready to sleep at all yet…..

Tagged: Spooniespoonie tumblr balltumblr spoonie party

Update on the med reaction

So i can’t stand for long still, but I’ve actually been able to sit the last few hours… after being in bed for over 24 hours I can’t tell you how nice that is!

If you don’t know what’s going on, I had a really bad reaction to my lamictal….. not only with my lupus, but one that is listed on the paperwork as a serious reaction. It’s not one that sends you to the hospital, but it is one where you are to stop the med immediately and let your doctor know asap.

I may also have an infection somewhere in my body from it. (It says that my symptoms can be indicative of an infection on the pamphlet.)

Tagged: lupusspooniebipolarbipolar medsbipolar IIbi-polarbiBi-Polar II

Support Dorian →

coffeesister:

| #spoonie seeks #coffee & #love |) As I said before, here’s to the much needed support we only find online… (|_|*ch33rs*|_|)

<3 & |_|)

Captain Jack & I have mentioned my upcoming surgery; well, it’s here now! As this posts, I’m visiting San Francisco General Hospital for the final preparations (YAY queue). Meanwhile, as I do all the heavy cutting lifting, my Hunny’s doing the real work of keeping everyone updated via this Facebook page.

PS: You don’t need to have an FB membership to see it & you don’t even need to friend either of us or “like” the page unless you want to comment.

Tagged: ch33rschronic illnesscoffeesisterFacebookfriendshiphealthJohnny Depplaughterlovemy HunnySan FranciscospoonieTwitterweb finds