My Autoimmunelife




About me  

Ask me anything

Arthritis Kids Poem →

faithhopepain:

I found this really awesome poem from the Arthritis Kids SA Support Group. It helped me and I hope it will help you.

Do and Don’ts for Arthritis:

Don’t assume that because I look well I feel well. Looks can be deceiving. Many days I look great but feel terrible.

Don’t tell me you know how I feel because you DON’T. Two people with the same disease can feel totally different.

Don’t tell me ‘’it could be worse’’. Yes, it could be but I don’t need to be reminded all the time.

Don’t be upset that you can’t ease my pain. It won’t do any good two of us being miserable.

Don’t ask me how I feel unless you really want to know. You may hear a lot more, than you are prepared to listen to.

Don’t assume because I did a certain activity yesterday that and I can do it again today. Arthritis is ever changing. Each day is different.

Don’t decide what I am capable of doing. Arthritis does not affect the brain. Allow me to decide what activity I can participate in. There may be times that I make the wrong decisions, and if I do, I will know it soon enough.

Do learn everything you can about the disease. The more you know, the better equipped you will be to know what to expect.

Do realize I am angry and frustrated with the disease, not with you.

Do let me know you are able to help me when I ask. I’ll be grateful.

Do offer me lots of hugs and encouragement.

Do understand why I cancel plans at the last minute. I never know from one day to the next how I will feel. Arthritis is like that.

Do continue to invite me to all the activities. Just because I am not able to bike ride with everyone doesn’t mean I can’t meet you for a picnic at the end of the trail. Please let me decide.

Arthritis Kids SA

Tagged: Arthritisdo's and don'tsjuvenile arthritisrheumatoid arthritischronic painfaithhopelovepain

Source: expressions-of-my-life

Interesting fact: people tell me that they don’t eat “carbohydrates” as they are fattening…

thereluctantrawfoodist:

My diet is full of them and I lost weight!

Tagged: carbsfruitvegetablescarbohydratesrawfooddietanti inflammatorylow histaminethinspothinspirationfitblrfitnessrheumatoid arthritisautoimmunediseaseweight lossmy dietpersonaltheoryhistamine intolerantimmune system

chroniccurve:

Please Help Spread the Word Worldwide About RA/Rheumatoid Arthritis! Be an Ambassador for RA Awareness: Please help by clicking on and sharing this simple  campaign with links to this page via your blog or website, Facebook,  Twitter or email.

chroniccurve:

Please Help Spread the Word Worldwide About RA/Rheumatoid Arthritis!
Be an Ambassador for RA Awareness: Please help by clicking on and sharing this simple campaign with links to this page via your blog or website, Facebook, Twitter or email.

Tagged: Rheumatoid arthritisAwarenessChronic illnesschronic pain

Source: chroniccurve

Tagged: illnessinvisible illnessHopeIllnessChronic painChronic illnessAutoimmuneSLERheumatoid arthritisHealth

Source: endoarmy

Spread the word! Invisible Illness Week 2011 will be September 12-18th

Tagged: CFSChronic illnessHealthIBSInvisible IllnessInvisible illness weekMEMSRAarthritisbipolarcrohn'seczemafibromyalgialupuspolymyalgiapsoriasisrheumatoid arthritisulcerative colitisautoimmune disease

Source: chroniccurve

Tagged: illnessinvisible illnessHopeIllnessChronic painChronic illnessAutoimmuneSLERheumatoid arthritisHealth

Source: endoarmy

wereallsofondofdying:

It takes a lot to make me cry. The worst thing to hear is “Stop faking it.”

I’m not faking. I never do. I never did. I’m in pain.

I don’t cry easily from physical pain……. so this is me too!

Tagged: Rheumatoid ArthritisArthritis

CHRONIC CURVE: Weekly Link Roundup 07/06/11 →

chroniccurve:



  1. Reach Beyond RAThe UCB RA Scholarship Program recognizes and rewards exceptional students who take control of their rheumatoid arthritis (RA) and do not allow it to control them.

  2. Invisible ProjectThe INvisible Project highlights the day-to-day experiences of pain survivors…

Tagged: Rheumatoid ArthritisInvisible IllnessLupusSLEHealthPhotographyLinksSpoon Theory

attention chronically ill followers:

spinlights:

I have started a website/blog for all things chronic illness(specifically SLE/RA/endometriosis/chronic pain)/scoliosis with a sister-blog for science majors battling chronic illness. Instead of posting articles like my A Guide For Friends… here on Spinlights, I’ll be posting them (along with a ton of other information/resources/details of my own journey) here:

chroniccurve.tumblr.com
chroniccurve.blogspot.com

Tagged: chronic-illnessChronic painScoliosisRheumatoid arthritisRALupusSLE

Source: lightriot