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25th September 2011

Arthritis Kids Poem →

faithhopepain:

I found this really awesome poem from the Arthritis Kids SA Support Group. It helped me and I hope it will help you.

Do and Don’ts for Arthritis:

Don’t assume that because I look well I feel well. Looks can be deceiving. Many days I look great but feel terrible.

Don’t tell me you know how I feel because you DON’T. Two people with the same disease can feel totally different.

Don’t tell me ‘’it could be worse’’. Yes, it could be but I don’t need to be reminded all the time.

Don’t be upset that you can’t ease my pain. It won’t do any good two of us being miserable.

Don’t ask me how I feel unless you really want to know. You may hear a lot more, than you are prepared to listen to.

Don’t assume because I did a certain activity yesterday that and I can do it again today. Arthritis is ever changing. Each day is different.

Don’t decide what I am capable of doing. Arthritis does not affect the brain. Allow me to decide what activity I can participate in. There may be times that I make the wrong decisions, and if I do, I will know it soon enough.

Do learn everything you can about the disease. The more you know, the better equipped you will be to know what to expect.

Do realize I am angry and frustrated with the disease, not with you.

Do let me know you are able to help me when I ask. I’ll be grateful.

Do offer me lots of hugs and encouragement.

Do understand why I cancel plans at the last minute. I never know from one day to the next how I will feel. Arthritis is like that.

Do continue to invite me to all the activities. Just because I am not able to bike ride with everyone doesn’t mean I can’t meet you for a picnic at the end of the trail. Please let me decide.

Arthritis Kids SA

Tagged: Arthritisdo's and don'tsjuvenile arthritisrheumatoid arthritischronic painfaithhopelovepain

Source: expressions-of-my-life

  1. jenmiller89 reblogged this from autoimmunelife
  2. lost-my-wings reblogged this from makearthritisstophurting
  3. marshyinwonderland reblogged this from expressions-of-my-life and added:
    this is so brilliantly apt i can’t even put all of it’s aptness into words
  4. unicornimpalment reblogged this from expressions-of-my-life
  5. a-curious-creature reblogged this from autoimmunelife and added:
    This is relevant to so many chronic illnesses…
  6. cviwhat reblogged this from autoimmunelife
  7. palefloridian reblogged this from autoimmunelife
  8. mathcat345 reblogged this from autoimmunelife and added:
    This also goes for adults with RA.
  9. lokigodofovaries reblogged this from clcooper125
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  16. makearthritisstophurting reblogged this from expressions-of-my-life
  17. santinadomenica reblogged this from expressions-of-my-life and added:
    quick note - i feel lucky as hell every day that my diseases haven’t advanced beyond my control yet. according to my...
  18. iwillbringhealthandhealing reblogged this from faithhopepain
  19. lauralovesyouu reblogged this from faithhopepain
  20. faithhopepain reblogged this from expressions-of-my-life and added:
    I found this really awesome poem from the Arthritis Kids SA Support Group. It helped me and I hope it will help you. Do...
  21. seahorsetheowl reblogged this from expressions-of-my-life
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